Read the Heart Failure Patient & Caregiver Charter

What is the Patient/
Caregiver Charter?

The Global Heart Hub Patient/Caregiver Charter outlines a set of expectations and responsibilities to support the creation and implementation of an internationally accepted standard of care for individuals living with Heart Failure (HF) and their caregivers.

The overall goal of this Charter is to support the development of optimal high-quality care and to promote its adoption internationally across all healthcare systems.

Read the Charter

Translated versions of the Charter:

Read the Charter for your Country:

We are delighted that at a country level, GHH Affiliates have become ‘Charter Champions’.

Australia

HF Charter Australia

USA

HF Charter USA
Summary (USA)

Lithuania

HF Charter Lithuania
Summary (Lithuania)

Brazil

HF Charter Brazil

More countries coming soon!

Watch now: Focus on Policy

Watch now: Charter Best Practices

It calls on…

Patients and caregivers:

• To know what to expect throughout their care pathway.

• To be empowered, to ask the questions that matter to them.

• To understand their individual rights and responsibilities regarding their own health.

Healthcare providers:

• To understand the lived experience and identify opportunities and solutions in their local setting, that would have a beneficial impact for patients.

Policymakers and other stakeholders:

• To guide their knowledge and opportunities to create change and deliver improvements in HF care with patient involvement.

Why do we need a Patient & Caregiver Charter for HF?

The healthcare available to HF patients varies widely across the world. This Charter serves as a tool for stakeholders in HF such as government, healthcare providers, insurance companies, patients and caregivers to identify and resolve local issues and take opportunities to implement change. It unites us to work collaboratively towards a common goal of improving the lives of individuals living with HF, which in return benefits patients, caregivers, and society as a whole.

Download the Charter

Download the 2-page Summary

The aim

Improve the overall quality of life for individuals with HF throughout the care pathway.
Establish a core set of patient/caregiver expectations that would be incorporated into an internationally accepted standard of care for HF, which would optimise patients’ quality of life and reduce HF-related mortality and hospitalisations.
Establish a core set of patient/caregiver responsibilities to empower individuals with HF to manage their health and enjoy a better quality of life.

Call upon policymakers, healthcare providers and payors to recognise HF as a serious, chronic condition which requires a united effort from awareness through to treatment and care.
Foster effective collaboration between all stakeholders – patients/caregivers, healthcare professionals, healthcare providers, policymakers and payors.
Ensure that the important role of patients and caregivers is recognised in future research activities, the development of treatment guidelines and overall cardiovascular disease
health policy.

This Charter has its origins in the HeartLife Foundation Canadian HF Patient Charter (www.heartlife.ca) and has been adapted by the Global Heart Hub, in partnership with patients and family carers globally.