Heart Failure Patient Council
The first patient council to be established by the Global Heart Hub was the Heart Failure Patient Council. This council is an alliance of patient organisations from across the globe, working with heart failure patients and their carers. A priority of the council is to raise awareness of heart failure, promote public and healthcare education and advocate for policy action in an insufficiently recognised and increasingly burdensome disease area.
Heart failure is a serious chronic condition where the heart cannot pump enough blood to support the needs of other organs in the body. The most common causes of heart failure include coronary heart disease, myocardial infarction (heart attack), congenital heart defects, or damaged heart valves. Red flag symptoms include breathlessness, fatigue and swollen limbs. It is estimated that 1 in 5 people are at risk of heart failure and it is the most frequent cause of hospitalisation in people over the age of 65.
The Patient Council is united in the view that heart failure is poorly recognised and not well understood by both the general public and healthcare professionals. There is global consensus that: