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AUSTRALIA

Her Heart

Her Heart is a health promotion charity and registered not-for-profit that aims to educate women on the risks of heart disease. As it has been found that the death of women due to heart disease is largely preventable, Her Heart aspires to educate and empower women to take control of their lives and make the necessary changes to decrease their risk of developing heart disease. It’s well-documented that funding more research will not drive change – it’s time we moved beyond the rhetoric and start taking action.

herheart.org

Heart Support Australia

Heart Support-Australia (HS-A)

Heart Support Australia is the national body providing support, services and information for people who have experienced a cardiac event. The National Office supports Heart Support Australia’s role as a Peak Body through information, engagement and collaboration with partners from across the health sector. Heart Support Australia also has a network of Branches and interest groups across Australia delivering information, education and support to individuals and their carers.

heartsupport.org.au

BRAZIL

ABRAF

ABRAF – Brazilian Pulmonary Hypertension and Related Diseases Association

ABRAF is a private non-profit organization whose objective is to support the community affected by Pulmonary Hypertension and Related Diseases through awareness, support and promotion of public policies. The organization was founded by Paulo Menezes on October 27, 2006. After the diagnosis of Pulmonary Hypertension of Maria Cristina (wife of the founder) in 2005, the family found itself completely helpless and voiceless and decided to gather the patients to spread the word out. Among its activities, ABRAF has four main focus areas:

  • Patients and caregivers: meetings, support groups, legal advice.
  • Health professionals: acting not only in partnership, but also for these professionals, Abraf seeks to promote the exchange of experiences, classes and updating on scientific topics.
  • Population: awareness campaigns, with the aim of promoting the early diagnosis of pathologies and, consequently, better quality of life.
  • Advocacy: through specific strategies for each case, Abraf seeks to influence decision-makers in the design and implementation of public policies that benefit patients.

ADJ – Diabetes Brasil

Association founded in 1980 to address Type 1 Diabetes; now works in the education and empowerment of patients with Diabetes and cardiovascular diseases, with the main banner of “Educate to Prevent”.

adj.org.br

AHF

Associação Brasileira de Hipercolesterolemia Familiar

On May 21, 2014, the AHF was founded, formed by patients and relatives. It has the support of medical experts as part of the Scientific Council. Our mission is to educate society about HF, promote equal access to diagnosis and treatment, and make an alliance with all stakeholders to improve the treatment rates of the disease.

organisation.website

Associacao Amigos Do Coracao

We promote the humanization of the hospital environment and improvement in life quality of the patients in treatment at the Instituto Do Coracao.

amigosdocoracao.org.br

Instituto Lado A Lado Pela Vida

Instituto Lado A Lado Pela Vida

For 10 years, the Side by Side Institute has been dedicated to bringing information about health and awareness of the importance of changing habits to adopt a healthier lifestyle, focused on prevention. We do this through our Campaigns and Pillars, acting throughout Brazil.

ladoaladopelavida.org.br

CANADA

Heartlife Foundation Canada

The Heartlife Foundation

The HeartLife Foundation is Canada’s first – and only – national patient-led heart failure organization. We are a Federal Not-for-Profit aimed at raising public awareness of heart failure, engaging patients, families and caregivers to provide education and mentorship, help facilitate access to the latest innovations and therapies, and advocate better care for all. Charitable status is currently under review

heartlife.ca

Heartlife Foundation Canada

Heart & Stroke Foundation

For more than 60 years, Heart & Stroke has been dedicated to fighting heart disease and stroke. Our work has saved thousands of lives and improved the lives of millions of others. You’ll probably run into someone today who is alive and well thanks to the countless Canadians who have supported our cause with their time and donations.

heartandstroke.ca

CHILE

ICARO

Registro Icaro – Sociedad Chilena de Cardiología

Registry of Chilean patients with heart failure.

Fundación Cardiovascular Dr. Jorge Kaplan Meyer

Fundación was created in 1992 with the aim of preventing cardiovascular diseases in both adults and children. It also promotes the development of reaseach and treatment of CV diseases. The organisation provides education and dissemination of information regarding care and disease risks of patients and the community in general.

fundacionkaplan.cl

COLUMBIA

ACOPEL – Asociación Colombiana de Pacientes con Enfermedad de Depósito Lisosomal

ACOPEL seeks to contribute to the elimination of barriers ranging from diagnosis to treatment. ACOPEL’s main objective is to help patients with lysosomal storage diseases in the search for solutions for their integral treatment and to provide the required assistance to patients, family members, medical staff,
health institutions and those interested in the detection, knowledge, management and treatment of diseases of lysosomal deposit.

acopel.org.co

Fundacion Colombiana del Corazon

Fundación Colombiana del Corazón

The Colombian Heart Foundation leads the Responsible Hearts program, a proposal to modify lifestyles through promoting the culture of care.

corazonesresponsables.org

Fundacion Bios

Fundación del Caribe para la Investigación Biomédica

Non profit organization for the investigation of risk factors that develop cardiovascular diseases.

fundacionbios.org

Fundem

Fundación Fundem

A non-profit organization with more than 11 years of experience in public policies and activities orientated to the welfare and quality of life of our users.

facebook.com/Fundación-Fundem

Red Colombiana de Hipercolesterolemia Familiar

RedCol HF is a support network for patients diagnosed with Familial Hypercholesterolemia ascribed to the Colombian Association of Patients with Lysosomal Deposit Diseases, ACOPEL.

colesterolfamiliar.org

RASA

Fundación Red de Apoyo Social de Antioquia: RASA

Non-Governmental Organization that promotes the effective enjoyment of the right to health of people affected by chronic diseases.

COSTA RICA

Asociación Costarricense de Cardiología

CZECH REPUBLIC

Diakar

Diabetik KV, Z.Ú.

We are a non-profit organization dedicated to the target group of people with diabetes and cardiovascular disease.

diakar.cz

EGYPT

The Egyptian Association for Care of Heart Failure Patients

The Egyptian Association for Care of Heart Failure Patients

Our aim is to heighten awareness of Heart Failure through a national disease awareness campaign. We aim to improve the lives of people living with heart failure. We will define and clarify the severity of the problem and make it understandable to all audiences. We will strive to amplify the patient voice by communicating with the media, press and policy makers.

FINLAND

Sydan

Heart District of Savo

The Finnish Heart Association is a vibrant community that strengthens the sick.

sydanliitto.fi

FRANCE

AVEC

AVEC (Association Vie Et Coeur)

A non-profit organization created by people with heart failure who aim to:

  • Offer non-medical support to newly diagnosed people and their families
  • Develop friendship and mutual help between members
  • Organize and offer the members adapted physical activities
  • Ensure exchanges of medical, paramedical and public information in consultation with the scientific council
  • Keep members informed about heart failure and related diseases
  • Ensure the representation of heart failure patients and defend their interests in various local, regional, national and international bodies
  • Promote information and research on heart failure and related diseases
  • Promote the prevention of heart failure

avec-france.com

ASPIC

Association pour les Patients Insuffisants Cardiaques

ASPIC’s mission is:

  • to work for the prevention of cardiovascular diseases
  • to morally support patients and their loved ones by listening and connecting with other people with heart failure
  • to make known the disease, its consequences and constraints for a better understanding of those who suffer and better care
  • support patients and their relatives in the observance of the food, medication and lifestyle guidelines imposed by the disease
  • to inform the public of the symptoms of the disease for an earlier diagnosis
  • to create a constant rapport with doctors and nursing staff for better management of the disease
  • to defend and if possible to change the rights and the help to the patients
SIC

Association pour le soutien à l’Insuffisance Cardiaque

Consisting of patients and representatives of hospital services, the SIC association aims, among other things, to help, support and support patients in their fight against heart failure by assisting or accompanying newcomers to the disease, by contributing to a better knowledge of this pathology and a better and wider consideration of its effects by the public authorities through health policy.

sic-asso.org

GERMANY

Herzschwaeche Franken

Herzschwacehe Franken E.V

Heart failure Franken E.V. has set itself the goal:

  • To provide information about the importance of cardiac insufficiency for health and life through publications and events
  • To promote and initialize programs for the early detection of heart failure
  • Support patients suffering from heart failure and their relatives

herzschwaeche-franken.de

GREECE

Epioni, the Greek Carers’ Network

Our aim is to provide continuous and quality support services for individuals who work as informal, unpaid carers of family members or friends who are struggling with physical or mental illness, disability or addiction.

epioniblog.wordpress.com

HUNGARY

SVZIVSN

SzivSN Territorial Patient Society

The staff of the Semmelweis University Cardiology Center and the patients were established by the HEART (We help you!) A nationwide patient association. The aim of the program is to allow patients with infarction, hypertension, arrhythmia, congenital heart disease, pacemaker, ICD to voluntarily join the association.

szivsn.hu

IRELAND

Croi Heart and Stroke Charity Ireland

Croí

At Croí, our aim is to lead the fight against heart disease and stroke, with a particular focus on the West of Ireland. Our mission is to prevent disease, save lives and promote recovery & wellbeing. Our work is funded from the proceeds of fundraising events, voluntary contributions and philanthropy. We are deeply grateful for the support and endorsement of our donors, supporters and volunteers who give so generously of their time and resources.

croi.ie

The Irish Heart Foundation

Serving generations of families in Ireland since 1966, the Irish Heart Foundation is an independent, national, not-for-profit organisation with a mission to stop people from dying prematurely from heart and stroke disease.

irishheart.ie

Heartbeat Trust

The Heartbeat Trust

The Heartbeat Trust is a charity established in 2004 by Prof Ken McDonald and Dr Mark Ledwidge to support specialist clinical and research services in heart failure and heart failure prevention in Ireland.

heartbeat-trust.ie

Irish Heart Failure Alliance

Irish Heart Failure Alliance

ITALY

AISC

Italian Heart Failure Patients Association

Our mission is the scientific knowledge of the pathology, the creation of a network of contact between patients and the encouragement of them to help and support each other through the sharing of knowledge and experiences.

associazioneaisc.org

CUORE

Cuore Italia

Heart Italy – Heart Valve Voice is an association that adheres to the European Heart Valve Voice network, created to introduce heart valve diseases, the chance to discover them, diagnose them and treat them.

cuoreitalia.org

Department of Medical-Surgery Sciences and Translational Medicine

Department of Medical-Surgery Sciences and Translational Medicine, University La Sapienza Rome, Sant’Andrea Hospital

LATVIA

Par Sirdi LV

“Par Sirdi.lv” is non-governmental organization founded in November 2011, bringing together various heart and cardio vascular disease patients, as well their relatives. Our mission: To reduce the impact of heart and cardiovascular diseases by promotion of healthy living, education of society regarding the risks of diseases, ensuring the access to health care information and advocacy of patients (defending patient rights to quality medical care and information).

parsirdi.lv

LEBANON

HFLEBANON

Heart Failure in Lebanon: HFLeb

Heart Failure in Lebanon (HFLeb) is a non-profit organization that is planned to help support patients with Heart Failure in Lebanon. This organization has two branches that include: multidisciplinary healthcare professionals from various disciplines medicine, nursing, nutrition, and physical therapy and a patient led organization that is being developed to help raise public awareness on Heart Failure.

American University of Beirut Medical Centre (AUBMC)

American University of Beirut Medical Centre (AUBMC)

AUBMC is an academic medical center dedicated to the passionate pursuit of improving the health of the community in Lebanon and the region through the delivery of exceptional and comprehensive quality care to our patients, excellence in education and training, and leadership in innovative research.

aubmc.org

LITHUANIA

Sirdies Lithuania

Lithuanian Heart Failure Organisation / Širdies Nepakankamumu Sergančiųjų Asociacija

The Lithuanian Heart Failure Association is a non-profit support organization founded in 2016. It unites heart failure patients and advocates on behalf of them. Cardio patients and their families have taken up the most active roles. The Association addresses medical practitioners and healthcare policy makers on their members behalf, calling for a mutual dialog and advocating for access to adequate treatment and psychological assistance, participate in the development and implementation of social programs, according to people with heart failure. Ms. Tatjana Pirmaitiene is President of Lithuanian Heart Failure Association and Ambassador for heart failure sufferers.

sirdiesnepakankamumas.lt

MALAYSIA

Sabah HF

Sabah Heart Centre

QEH2 Department of Cardiology, or “Sabah Heart Centre” is the only public tertiary hospital providing tertiary cardiology, cardiothoracic surgery and paediatric cardiology services.

facebook.com/sabahheartcentre.damai

MEXICO

ALE

Asociación Ale

Founded in October 2004 by families Alverde Castro and Castro Careaga in Los Mochis, Sinaloa, after the death of Ale — son of Luis Eduardo Alverde and Adriana Castro — and the extraordinary experience and satisfaction, in pain, of organ donation. Ale has been responsible for awakening people to the reality of organ donation in Mexico.

asociacionale.org.mx

ACHPA

ACHPA- Asociación Colombiana de Hipertensión Pulmonar and FIC Mexico

The FIC Mexico work in three main areas; cadriovascular health, cancer, tobacco control.

ficmexico.org

Fundacion Mexicana

Fundación Mexicana del Corazón A.C.

This organization watches over the cardiovascular health of the socio-economically most vulnerable population in Mexico. Organization created by the National Institute of Cardiology “Ignacio Chávez“. Its commitment is to create a health care program aimed at the population with fewer resources.

fundacionmexicanadelcorazon.blogspot.com

Fundacion Midete

Fundación Mídete, A.C.

Social Organization whose objective is to promote projects and citizen actions of prevention, treatment and control of overweight, obesity and diabetes.

facebook.com/F.Midete

Vida en Genoma

Fundación Vida en Genoma

Non-profit Mexican Foundation that makes the opportune diagnosis of patients with familial hypercholesterolemia and other hereditary diseases, and later identifies families at risk through genetic study.

vidaengenoma.org

NETHERLANDS

Hart Volgers

Hart Volgers

Hart.volgers is the platform on which heart patients and cardiologists come into contact with each other within a controlled environment.

hart.volgers.org

Let the beat go on

Let the Beat Go On

“Let the beat go on’’ coaches and supports people with heart diseases and heart failure. Let the beat go on offers courses in creative stress management and in mindfulness. Creative stress management training gives you more insight in the physical effects of stress; how your brains, body and heart (rhythm) respond and how you can use your emotional brakes. The training is based on the cognitive therapy of the US psychiatrist Aaron T. Beck. Often, patients experience ‘life events’ such as resuscitation, interventions and sometimes experiencing near death.

letthebeatgoon.com

PORTUGAL

Portugese Heart Foundation

Portuguese Heart Foundation

As doenças cardiovasculares são a primeira causa de morte em Portugal. A prevenção é um meio para combater este flagelo e essa é a nossa missão: sensibilizar para a adopção de comportamentos saudáveis. Pequenos gestos do dia-a-dia podem fazer a diferença de uma vida!

fpcardiologia.pt

Bate Bate Coracao

Associação Bate Bate Coração

Somos uma instituição sem fins lucrativos que tem como objetivos a sensibilização e mobilização para os temas da prevenção, diagnóstico e tratamento das doençascardiovasculares, que constituem a principal causa de morte da população portuguesa. Trabalhamos para construir uma sociedade mais informada e capaz de prevenir os fatores de risco das doenças cardiovasculares e de lidar com as suas ocorrências.

batebatecoracao.pt

AADIC – Associação de Apoio a Doentes com Insuficiência Cardíaca

ROMANIA

Patient Alliance for Chronic Diseases

The GACD represents high quality implementation science that is peer reviewed.

gacd.org

SLOVENIA

Slovenian Heart Foundation

The Slovenian Heart Foundation (originally Društvo za zdravje srca in ožilja Slovenije) is a humanitarian non-governmental organisation that has been operating in the public interest in the field of health care since 1991. The Foundation carries out its activities throughout Slovenia. It includes 9 branches and two independent associations (the Regional Heart Foundation for Maribor and the Podravje Region as well as the Regional Heart Foundation for the Pomurje Region) with over 8,000 members altogether.

zasrce.si

ZKDKS

Association of Coronary Societies and Clubs of Slovenia

Association of Coronary Societies and Clubs of Slovenia is a representative organization of Slovenian coronary patients. We are taking care of the third phase of modern comprehensive rehabilitation of coronary patients, taking place after patients return to their home environment, that is, after their release from hospital (phase 1) and guided rehabilitation in spas or as out-patient (phase 2). It is based on professionally managed and safe physical training carried out by specially trained practitioners with medical education and under supervision of cardiologists, members of societies’ Expert councils. Training is based on professionally verified guidelines of Slovenian cardiology. During 2019 we carry out training in 143 training groups in 81 locations in Slovenia.

Within Association and Societies we take care of continuous patients’ education and familiarization with the latest findings of the cardiology profession, enabling coronary patients to take independent, responsible and autonomous decisions related to maintaining and strengthening their health.

An important part of our work is introduction of various forms of socializing, knitting a social network among individuals with the same problems. We offer psychosocial support for solving problems with experiences of anxiety and depression, which are very common to cardiovascular patients.

Our Association offers member societies and clubs a support in the implementation of comprehensive lifelong rehabilitation, particularly in the training of rehabilitation practitioners and other program providers and in the provision of financial resources.

Activities of Associations’ Expert council ensure modernization of existing programs and development of new forms of work for individual groups of coronary patients. Association cooperates with Association of Cardiologists of Slovenia and with other professional institutions and ensures that activities carried out by Societies and Clubs are always coherent with the modern guidelines of the cardiology profession.

zkdks.si

SPAIN

AEPOVAC

AEPOVAC

We are a group of volunteers who aim to help patients and family members with cardiac prostheses and / or anticoagulated with any cardiovascular disease and sensitize the population of the importance of heart disease in the loss of quality of life.

aepovac.es

GICOR

Associació Gironina de Prevenció i Ajuda a les Malalties del Cor (GICOR)

We are a non-profit organization whose objectives, among others are to:

  • Promote and disseminate the prevention and control of diseases of the heart.
  • Help monitor the major risk factors (hypertension, cholesterol, smoking, diabetes …)
  • Raise awareness about the need to create hearthealthy habits.
  • Promote self-esteem after heart disease.
  • Encourage activities to improve the quality of life.
  • Collaborate with the Ministry of Health in health planning.

gicor.org

Enfermedades

Asociación de Enfermedades Cardiovasculares Corazón sin Fronteras

We are a non-profit association for the promotion and prevention of cardiovascular disease in Spain.

corazonsinfronteras.org.es

Cardio Alianza

Cardio Alianza “The Spanish Association of Heart Patients”

Cardioalianza is a non-profit association, formed in 2014, which brings together 16 organizations of patients with cardiovascular diseases (CVD) in Spain.
Cardioalianza are dedicated to improving the quality of life and well-being of people with CVD.

cardioalianza.org

U.S.A.

Mended Hearts

Mended Hearts

Mended Hearts is a national and community-based non-profit organization that has been offering the gift of hope to heart disease patients, their families and caregivers. To offer this hope Mended Hearts provides a variety of programs.

mendedhearts.org

Preventive Cardiovascular Nurses Association

The Preventive Cardiovascular Nurses Association is the leading nursing organization dedicated to preventing cardiovascular disease through assessing risk, facilitating lifestyle changes, and guiding individuals to achieve treatment goals.

pcna.net

WomenHeart

WomenHeart

WomenHeart: The National Coalition for Women with Heart Disease was founded in 1999 by three women who had heart attacks while in their 40s and faced
many obstacles, including misdiagnosis, inadequate treatment, and social isolation.

womenheart.org