Career Opportunities with the Global Heart Hub

Patient Community Engagement and Development Specialist

About the Global Heart Hub:

The Global Heart Hub (GHH) is the first international non-profit organisation established to provide a voice for those living with, or affected by, cardiovascular disease. We are an alliance of heart patient organisations, aiming to create a unified global voice for those living with or affected by heart disease.

Established in 2019, with registered offices in Ireland, our aim is to unite patient groups and advocates from every country in the world under the umbrella of the GHH. Our combined mission is to raise awareness of heart disease and the challenges it presents in everyday life. The GHH is a platform for heart patient organisations to share their views, learn from each other’s best practice, unite on common advocacy goals, and share resources. We aim to increase awareness and understanding of the many heart conditions that exist, contribute to improving patient outcomes, enhancing quality of life, and optimising longevity and healthy ageing.

About this role:

We now have an exciting opportunity for a Patient Community Engagement and Development Specialist who will lead the continued growth and expansion of our international alliance of patient organisations and patient advocates under the umbrella of the Global Heart Hub. We wish to appoint a highly motivated, energetic and experienced individual to lead our outreach and engagement with patient organisations and patient advocates across the world; support the onboarding of new affiliates and manage relationships with existing affiliates. The post holder will be responsible for all our patient engagement and communications activities with all our affiliates, supported by our Communications team. This position will report directly to the GHH Executive Director. While GHH is based in Ireland, this position is open to remote working and we are keen to attract a high-calibre candidate who is fluent in English and ideally also proficient in other languages.


  • Expand and grow an international community of individuals with lived experience of heart disease by identifying patient organisations and groups across the world and developing and maintaining strong relationships with the Global Heart Hub.
  • Develop and expand our network of partners and supporters.
  • Provide strategic and hands on leadership in patient organization mapping, outreach, relationship-building and partnership development so as to shape and achieve effective community engagement and overall Global Heart Hub expansion and development.
  • Plan and deliver a diverse and interactive community engagement and development programme focused on developing patient organisation capacity and capability in areas such as organisational development, stakeholder engagement, policy development and advocacy activation.
  • Monitor, assess, anticipate and respond to the evolving needs of the patient community and those of all our stakeholders.
  • Maintain and develop our patient, carer and stakeholder database, ensuring regular contact and effective communications are maintained at all times.
  • Project management to include ideas generation, budgeting, communications, project execution and delivery, evaluation and reporting.
  • Collaboratively work with our communications team, patient council, working group executive leads and voluntary chairpersons to deliver to the vision and aims of the Global Heart Hub.


The successful candidate must have at least six years’ experience of working in patient community engagement & development, patient advocacy, membership management, communications, project management or other related or relevant disciplines.


  • Considerable experience in a project management leadership role, delivering from inception through to implementation with minimal direction while balancing all stakeholder requirements and interests.
  • Proven record of leading, motivating, developing and maintaining effective relationships with Individuals and groups.
  • Exceptional communications skills with proven ability to deal effectively with a range of stakeholders to include, the general public, media, political representatives, diverse community representatives and staff at all levels of an organisation.
  • Ability to foster a culture of collaboration, innovation, accountability and trust, operating ethically, with integrity and for the public good.
  • Excellent analytical and problem-solving skills and demonstrated experience of planning and developing communications materials such as newsletters, reports, briefing notes, position papers etc.
  • Strong experience of database management.
  • Proficient in the use of social, digital and traditional media communications.
  • Hold at least a primary degree level qualification in public relations, marketing, communications, business or related field.
  • Healthcare or patient advocacy experience desirable.


Salary commensurate with experience. Full-time position. This is initially a fixed term contract position for one year.

To apply, please send your CV with a cover letter to before Friday, July 1st, 2022.

Applicants should be available to commence employment as soon as possible.

A desktop shortlisting process may be carried out prior to interview stage.  Attendance at interview will be at the candidate’s own expense.

This job profile will be subject to review in accordance with service developments and is neither restrictive nor definitive, but rather a guide to the general range of duties required.