Disclaimer and Privacy Policy
Disclaimer
The Global Heart Hub Clinical Trial Portal, and the related information provided, is designed to support patients, carers, and advocates by providing accessible information on clinical trials for cardiovascular and connected conditions. Our goal is to help individuals feel more informed and empowered when discussing trial participation with their healthcare professionals, and to encourage equitable access to clinical research opportunities globally.
This platform is not intended to offer medical advice or determine an individual’s eligibility for a clinical trial. The content presented is for general information purposes only and should not replace consultation with a qualified healthcare provider. Patients are encouraged to speak with their medical team regarding all treatment options and the potential risks and benefits of trial participation.
We also recognise the vital input of patient representatives, healthcare professionals, and clinical trial experts who have helped shape and review this information to ensure it reflects the latest, most accurate insights available.
Our primary source of trial listings is clinicaltrials.gov, supplemented by contributions from trial sponsors, hospitals, and national networks. Despite our commitment to maintaining accuracy, some listings may not always reflect the most recent updates. In particular, trials for which sponsors have not publicly shared site information in the main repository we use, cannot be featured.
Privacy Policy
GLOBAL HEART HUB (the “Controller”), with registered office at Moyola Lane, Newcastle, Galway, Ireland, is the Controller of your personal data processed through the use of the clinical trial portal and its language-specific derivatives.
ESPERITY BV (company number 0848.466.027), with registered office at Boulevard Brand Whitlock 108, 1200 Brussels, acts as the Processor on behalf of the Controller. Esperity provides and operates the customized search engine used in the Global Heart Hub Clinical Trial portal. This tool, owned and managed by Esperity, powers the clinical trial portal tailored for cardiology and related disease areas.
1. WHAT PERSONAL DATA DO WE PROCESS AND WHY?
|
PURPOSE |
PERSONAL DATA PROCESSED |
LEGAL BASIS | ARE YOU OBLIGED TO PROVIDE US WITH YOUR PERSONAL DATA? | HOW LONG DO WE HOLD YOUR DATA? |
|---|---|---|---|---|
| The provision of the services which consist of -allowing you to search clinical trials to which you can apply, if you wish | Ip address, language | The performance of the contract | Yes. This data is automatically collected. If you want to use the application you will have to provide us with this data. | For the duration of the service. |
| Security of the system | IP address, Log | Our legitimate interest of keeping our system secure | Yes. This data is automatically collected. If you want to use the application you have to provide us with this data. | 6 months |
| Statistical analysis on our users | IP address, language, Keywords used for the research, trials searched | Our legitimate interest in knowing how our portal is used and your explicit consent for health-related data (specific trials searched) | It is always optional to provide your consent for the processing of your health data for statistical analysis | For the duration of the service, then the data will be anonymised |
| To profile you with the purpose of sending you a newsletter on relevant trials. Based on your searches on our website we will select the trials we believe are of interest for you and we will inform you of their availability |
Email address, IP address, trials searched |
Your explicit consent to be profiled with the purpose of receiving information on specific trials and your explicit consent to the processing of health data for profiling | No. You can decide not to express your consent to be profiled for receiving the newsletter and you will still be able to use our website | 12 months |
2. COOKIES
Cookies are small text files that are placed on your computer by websites that you visit. They are widely used in order to make websites work, or work more efficiently, as well as to provide information to the owners of the site.
When you use our application we use a third-party cookie, Google Analytics, to collect standard internet log information and details of visitor behavior patterns. This information is only processed in a way that does not directly identify anyone. We use the information to get aggregated statistics on visitor activities.
This information is collected only with your consent. We have measures to protect the information collected, which include, limiting the amount of data collected (including not sharing the IP addresses with Google), setting a retention schedule, restricting access to our Google Analytics data, and regularly reviewing our use of analytics.
We keep analytics data for 14 months from a visitor’s last visit.
3. HOW DO WE USE YOUR DATA FOR THE PURPOSE OF SENDING YOU INFORMATION ON TRIALS
With your consent we will keep track of your searches for clinical trials on our website to outline which clinical trials are of interest to you and with the purpose to send you information about new relevant clinical trials. The content of the information will be selected automatically, based only on your previous research. If the content provided does not match your preferences or you want to express your opinion about this content and/or you prefer obtaining a human intervention for the choice of the content you are provided with, please contact us at dpo@esperity.com
4. WHO CAN WE COMMUNICATE YOUR DATA TO?
Your data will be communicated to our hosting providers, suppliers of IT services and application software and consultants, who are our data processors.
Statistical and aggregated information resulting from our statistical analysis on the usage of the portal will be shared with Clinical Partners, Medical Institution, researchers to allow them to understand the interest for their research.
5. WHERE IS YOUR DATA PROCESSED?
We are based in Europe and your data is stored in the European Union. If in future we should rely on suppliers based outside the EU the data transfer will take place only in presence of adequate safeguards, such as an Adequacy decision or the Standard Contractual Clauses provided by the European Commission.
6. HOW DO WE SUPPORT YOU IN DEALING WITH DATA SUBJECT RIGHTS?
Please, remember that you can access and correct your data. You can obtain the erasure of your personal data under certain circumstances. You also have the right to restrict the processing of your personal data if some requirements are met.
Moreover, you can receive a copy of your personal data or ask Us to transmit that data to another controller, where technically feasible.
Regarding the automated decision-making process and profiling used for sending you information on relevant clinical trials you can always obtain the human intervention, express your opinion and object to the choice.
You can withdraw your consent at any time.
You can lodge a complaint with the supervisory authority of your country in case you think that your rights have been breached.
You have also the right to object to the processing of personal data which is based on the controller’s legitimate interest and to object to the profiling for receiving the newsletter.
If you wish to exercise one of these rights, you can contact the DPO of Esperity at dpo@esperity.com dpo@esperity.com
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Copyright 2025 Global Heart Hub. All Rights Reserved.
Copyright 2025 Global Heart Hub | All Rights Reserved