Cardiomyopathy Patient Council in-person meeting

Global Heart Hub’s Cardiomyopathy Patient Council discuss Cardiomyopathy, Cardiac Amyloidosis and Heart Failure at this year’s Patient Council meeting in Windsor, UK.

We were delighted to be in Windsor, UK, this year for Global Heart Hub’s in-person Cardiomyopathy Patient Council meeting which took place on August 25^th-28^th. This event brought together 17 patient organisations from 12 different countries over 3 days, where we examined common challenges and synergies, and explored opportunities for collaboration with a view to improving awareness, diagnosis and management of cardiomyopathy.

We were honoured to be joined by several fantastic speakers, including Professor Hugh Watkins from University of Oxford and Prof. Perry Elliot of University College London at this year’s Cardiomyopathy Patient Council meeting. Discussing a range of topics from the biggest challenges and arising needs, to evolving cardiomyopathy disease and understanding genetic therapies.

The Cardiomyopathy Patient Council aim to raise awareness and encourage people to ‘Think Cardiomyopathy’ by helping people recognise the signs and symptoms (which can be subtle) and encourage people to know their family history, especially with a family history of heart disease or a close relative who died suddenly and unexpectedly at a young age.

In addition to the Patient Council meeting, Global Heart Hub hosted a session with key stakeholders to discuss synergies, challenges and opportunities in Cardiac Amyloidosis, Cardiomyopathy and Heart Failure. This subsequent meeting explored collaborative approaches for those affected by these connected conditions, providing a unique opportunity to connect, share experiences, and map our course for the future.

Cardiomyopathy is a disease of the heart muscle that can occur at any age and can be passed down genetically. It affects around 1 in every 250 people worldwide. Know your family health history and think cardiomyopathy. Learn more.